In action for CKD

WHO is WHO

The “Who is Who” section of the Kidney Health Code website introduces the key individuals and organizations dedicated to improving kidney health across Europe.

It highlights the collaborative efforts of experts and stakeholders working together to advance kidney care and policy.

Learn more

Organisations and initiatives promoting kidney health at a global level

ISN

The International Society of Nephrology (ISN) is a global professional association dedicated to the advancement and improvement of kidney health worldwide since 1960 through education, grants, research and advocacy. ISN, through its members and in collaboration with national and regional societies, engages 30,000 healthcare professionals around the world to reduce the burden of kidney disease and provide optimal healthcare to patients by:

  • Addressing gaps in available care through advocacy and collaborations with our global partners
  • Capacity building of healthcare professionals through grant programs, education and research
  • Connect healthcare providers, NGOs, politicians and the general public to develop a better understanding of kidney disease management.

www.theisn.org

KDIGO

Kidney Disease Improving Global Outcomes (KDIGO) is a global organization developing and implementing evidence-based clinical practice guidelines in kidney disease. It is an independent, volunteer-led, self-managed foundation incorporated in Belgium and accountable to the public and the patients it serves.

https://kdigo.org/guidelines/

World Kidney Day

https://www.worldkidneyday.org/

Global Patient Alliance for Kidney Health (GloPAKH)

https://globalkidneyalliance.org/

World Health Organization (WHO) and the Spanish Transplant Organization, Organisación Nacional de Trasplantes (ONT) 

Joint WHO-ONT Global Observatory on Donation and Transplantation (GODT).

https://www.transplant-observatory.org/

Organisations and initiatives promoting kidney health at a pan-European level

European Kidney Patients’ Federation (EKPF)

EKPF, founded in 1981, is the umbrella organization of 25 national kidney patients’ associations in Europe. The main objectives of the EKPF are to promote the prevention of kidney disease, to establish access to treatment for all European patients with kidney disease patients and a European quality standard on the treatment of kidney failure, to promote the well-being, social security and living conditions of all patients and their caregivers, cooperate and exchange information with organizations and bodies involved in therapy of kidney diseases, and promote organ donation and transplantation.

www.ekpf.eu

European Kidney Health Alliance (EKHA)

EKHA is a joint stakeholder effort to provide solutions to the challenges of chronic kidney disease in Europe through effective prevention and a more effective care pathway aimed at facilitating the provision of appropriate and affordable treatment to all Europeans equally, while promoting the highest quality of care. EKHA starts from the principle that the issue of kidney health and disease must be considered at European level and that the European Commission and the European Parliament have a vital role

to play in helping national governments address these challenges. EKHA is organising an annual Kidney Forum and adheres to the Decade of the KidneyTM Initiative as strategic framework.

www.ekha.eu

European Dialysis and Transplant Nurses Association/European Renal Care Association (EDTNA/ERCA)

EDTNA/ERCA is a multidisciplinary organization of individual members including nurses, technicians, social workers, dieticians, unit heads, transplant coordinators and other professionals working with people with disease. It also includes      people undergoing dialysis or living with a functioning kidney transplant. The Association’s mission is to provide education and research initiatives to assist in the professional development of all kidney health professionals and improve the quality of care for people with kidney diseases.

www.edtnaerca.org

European Renal Association (ERA)

ERA, founded in 1964, is one of the fastest growing medical associations in the nephrology area dedicated to encouraging and reporting advances in the field of clinical nephrology, dialysis, kidney transplantation and related topics. The ERA Registry provides a rich source of European epidemiologic statistics on people with kidney diseases.

http://www.era-online.org

The European Rare Kidney Disease Reference Network (ERKNET)

www.erknet.org

EU MEP Group for Kidney Health

The Group of Members of the European Parliament (MEPs) for Kidney Health is an informal group of European parliamentarians dedicated to “kidney health” (MEP Group for Kidney Health).

http://ekha.eu/mep-group

European Pediatric Organisations

  • European Society for Paediatric Nephrology
    https://www.espn-online.org/
  • European Working Group on Psychosocial Aspects of Children with Chronic Kidney Disease https://www.ewopa-renalchild.com/
  • Pediatric weblink of Kidney Care UK
    https://infokid.org.uk/

European Society for Organ Transplantation (ESOT)

ESOT was founded nearly 40 years ago and is dedicated to the pursuit of excellence in organ transplantation. Facilitating a wealth of international clinical trials and research collaborations over the years, ESOT remains committed to its primary aim of improving patient outcomes in transplantation, with a community of over 8,000 members from around the world.

https://esot.org

Eurotransplant

The Eurotransplant network consists of Austria, Belgium, Croatia, Germany, Hungary, Luxembourg, the Netherlands and Slovenia and serves a total population of around 137 million people. Over a period of more than 50 years, Eurotransplant has facilitated the allocation and cross-border exchange of deceased donor organs – kidneys, livers, pancreases, intestines, hearts and lungs. Partners in the organ exchange process include hospitals where organ donations take place, national organ procurement organizations, transplantation centres, tissue-typing laboratories and national competent authorities.

www.eurotransplant.org

Kidney organisations at national level – Europe region

Some patient groups

Professional societies

Foundations

Kidney organisations at national level – other regions

North America

Asia Pacific

Health promotion organisations at global level

World Health Organisation

The World Health Organization (WHO) took its first steps with the entry into force of its Constitution on April 7, 1948 – a date we now celebrate each year as World Health Day. More than 7,000 people work worldwide, with headquarters in Geneva. The WHO places kidney diseases in the top 10 causes of death in high-income countries and anticipates a deterioration.

Health Skills

WHO Collaborating Centre for Health Literacy

International Health Literacy Association (IHLA)

Other

Other health-related organisations at global and European level

Institute for Health Metrics and Evaluation

https://www.healthdata.org/research-analysis/gbd

Organization for Economic Cooperation and Development (www.oecd.org)

The Organization for Economic Co-operation and Development (OECD) is for 60 years an international organization which works to implement better policies for better lives. OECD makes data, analyses and advice on public policies available to leaders while facilitating the sharing of experiences and best practices between countries and change actors. The OECD regularly analyses the quality of the health system in these member countries.

https://www.oecd.org/

Example for France:

https://www.oecd.org/fr/publications/france-profils-de-sante-par-pays-2019-1abb0fea-fr.htm

https://www.oecd.org/france/health-at-a-glance-france-EN.pdf

The European Observatory on Health Systems and Policies

https://eurohealthobservatory.who.int/

Health Emergency Preparedness and Response (HERA)

https://health.ec.europa.eu/health-emergency-preparedness-and-response-hera_en

European Patient Forum (EPF)

EPF is the leading voice of 77 patient organizations in Europe.

www.eu-patient.eu

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